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He had blood drawn and called me and told me everything was fine…wrong. My body was rejecting all food, I was losing a lb a day, I couldn’t walk or hold a coherent conversation…and I was fine??? My father found me one day on the couch close to unresponsive, he thought I was dying, he picked me up and rushed me to the ER. there told me, “I don’t know what you are doing here, or what you think I can do for you.”. GI took pity on me, recognized I was an autoimmune mess, as he put it. All the while they were feeding me hospital food with gluten so I got to the point where I could not get out of bed, drink or eat for several days (was on a drip).
Dude is always right and me…not so much.) After speaking with me for only a few minutes and viewing my food diary, the doc asked me if I had ever heard of celiac. You know what the average time is for a celiac diagnosis? If you’ve got a Doctor Horror Story to share, write yours in the comments section below. After my doctor couldn’t figure out why I was having so many issues with my digestive system (stabbing pain, nausea 24/7, cramping and a belly so bloated I looked pregnant) she sent me to a GI specialist. She asked me to describe the pain and what I did to manage it (slept, heating pads, ate LOTS of crystallized ginger for the nausea). It took me another three years to find a doctor who would take me seriously. I had had stomach issues my whole life but they were either diagnosed as lactose intolerant or stress due to issues with my mother. The doctor told me, maybe I was diabetic, maybe I was just depressed. Test after test for lupus she said it was inconclusive but had nothing to do with my stomach issues…wtf?? He told me to try to get in with a G…thanks for the help bud! Was kept in for a week whilst the gynecologist and gastro doctors both pointed at each other (that was weird).
I didn’t realize it at the time, but I was extremely lucky to have been diagnosed so quickly. And even after we finally get the diagnosis, we are simply told to not eat gluten and are shown the door. These stories need to be heard…and I’m just the guy to do it Let’s raise awareness and at the same time, push the medical community to try and get their sh*t together. Her response, “As long as you take laxatives you’ll be fine.” At that point, I was desperate for anything so I tried the laxatives. In a couple of days, I was sicker than I had ever been. A year and a half ago I began to be concerned over my significant memory loss, severe exhaustion and increase in gastro symptoms. The pain was so bad not even the morphine could stop it – but I didn’t care so much as I was high as a kite.
Is it because there’s no drug to cure celiac and so there is no financial incentive for the medical industry? Over the past few years months, you’ve shared doctor horror stories that have absolutely floored me. I asked her what I could do to PREVENT the symptoms I was having. Symptoms continued of course, and I was admitted to hospital emergency in 2011.
I was offered more drugs than you can imagine: pain meds, anti-depressants, anti-anxiety meds, sleep meds, antacids, thyroid meds I did not need —and even sent to a psychiatrist– to get me to shut up and leave the office.